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Effects of Nurse-Led Stigma-Reduction Education in Epilepsy

Sponsor: Muş Alparslan University • ClinicalTrials.gov ID: NCT07863310

Registry updated: 2026-10-07

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Description

This randomized controlled trial aims to evaluate the effect of a nurse-led, stigma-reduction-based epilepsy education program on perceived/internalized stigma, concealment of epilepsy, and self-management among adults with epilepsy. Participants will be randomly assigned to an intervention group or a control group. The intervention group will receive a structured nurse-led education program consisting of four weekly sessions, each lasting approximately 45-60 minutes. The program will address epilepsy-related knowledge and misconceptions, stigma and self-stigma, disclosure and concealment of epilepsy, communication, medication adherence, seizure triggers, stress management, seizure diaries, and individual self-management planning. The control group will receive routine care without additional structured education during the study period. Outcomes related to epilepsy stigma, concealment, and self-management will be assessed using validated measurement tools.

Interventions

Nurse-Led Stigma-Reduction-Based Epilepsy Education (Behavioral)
Participants in the intervention group will receive a structured nurse-led epilepsy education program focused on reducing stigma and supporting disease disclosure and self-management. The program will consist of four weekly sessions lasting approximately 45-60 minutes each. The sessions will address epilepsy-related knowledge and misconceptions, stigma and internalized stigma, concealment and disclosure of epilepsy, communication, medication adherence, seizure triggers, stress management, seizure diary use, and individualized self-management planning.

Eligibility criteria

Inclusion Criteria: * Age 18 years or older * Diagnosed with epilepsy at least 6 months before enrollment * Able to communicate and participate in the education program without a cognitive or psychiatric condition that would prevent participation * Able to read and understand Turkish * Willing to participate in the study * Provides written informed consent Exclusion Criteria: * Presence of a severe neurological disorder other than epilepsy * Presence of a serious psychiatric disorder * Advanced cognitive impairment or any condition preventing effective communication * Unable to attend the educational sessions regularly * Major change in the treatment protocol during the study * Incomplete completion of data collection forms * Withdrawal from the study at any stage

Conditions

Epilepsy

Locations

Malatya Training and Research Hospital — Malatya, Turkey (Türkiye)

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Official Source

Data sourced from ClinicalTrials.gov, a service of the U.S. National Institutes of Health.

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